Can you believe she's THREE?! We feel especially grateful to celebrate this special day with our sweet little Rebekkah. A little less than three years ago doctors discovered that our perfect little baby girl had a not so perfect heart. She was born with a very rare condition having to do with a malformed tricuspid valve. Doctors also found that she several accessory pathways which cause her heart to beat incorrectly. And if that wasn't enough for our sweet little princess, she also has to deal with a blood clotting disorder. The news of her challenges was crushing. Doctors couldn't give us the answers to all of our questions and the realization that she may not be ours for as long as we thought tugged at our hearts. But with the faith and prayers of our friends and family, Heavenly Father has given us another year to spend with her. She is stable now, and continues to do well with her current medication. But we are not disillusioned. We know that the medications will not work forever, and she will need to have surgery to seal off the holes in her heart. We know that as she grows her valve could worsen and we will be faced with some very difficult decisions. But for now we will laugh when she dances in her tu tu, and cuddle when she has a bad dream, and pray each night when she drifts off to sleep for many more years with our beautiful Rebekkah.
1 comment:
I dont know if you remember me. We were Ammon's nursery and sunbeam teachers. I ran into Amanda Moore tonight and found your blog through her facebook. Our own little miracle Kyle is also 3 1/2. We have spent the last almost 2 years act PCH as well. Kyle was diagnosed with a brain tumor right before his 2nd b-day. We treasure every moment with him as well. Happy B-day to your sweet girl and here's to many more.
Brittney Oden
www.luvmynfboys.blogspot.com
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