This past week Bekkah and Jackson have both seen thier cardiologists. Jackson is still doing well. His murmur is still there, and he still has some leaks, but they are small. He will have another echocardiogram in September and if all is still well, he will be discharged! Yeah!!
Rebekkah's heart is still very pre-excited (beats too fast). As a result she burns calories quickly and doesn't gain weight like she should. But he said she looks really good and her tests came back ok. He wont take her off her meds, but he didn't put her on a higher dose either. She's still too small for the surgery for her WPW. He wants to check her Ebsteins to see if the valve is growing ok and to check the size of her heart. But to do that she needs to hold still for the Echo and she doesn't do that very well. We had a hard time just getting a reliable EKG. So we are going to wait for a few months then try it. If she is still too wiggly they will sedate her. He also told us that if she were to "grow out" of the WPW, she would have done it by now. So I guess we're in this for the long haul.
Though my hopes of going off meds were not realized, I still felt good about the visit. Her cardiologist is very positive and upbeat and that helps to calm my fears.
I know the Lord is watching over her.
About Me
- Huston Family
- Our lives are dedicated to the Lord, we live by this creed: Be clean Be grateful Be humble Be prayerful Be smart Be true Be positive Be involved Be still, We BE the Hustons!
CIRCLE OF LOVE
(and sometimes not so much)
3 comments:
What I want to know is if you get a group rate at your Cardiologist?
Your children are SO sweet. And that little Bekkah amazes me... I definately agree that the Lord will watch over your little ones. And you.
I love singing with Bekkah in nursery. She will be in my prayers as well as blessings for your family for the love and support you have given all your little ones.
The Lord WILL bless you and give you even more peace.
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