THE PATIENT:
Bekkah and I spent the afternoon at the hospital for her heart check up. They did the usual battery of tests, the worst is pulling off the "stickers" from the EKG. She squeezed her eyes so tight it almost made me cry. I wonder what she must think in her little mind as she watches me smile and ask her to hold still while doctors and nurses inflict pain on her. She's such a strong little girl.
THE PROGNOSIS:
"There are two schools of thought in medicine," her
electrophysiocardiologist explained to me, once he examined her. Old school is "If there are no symptoms or they are under control, don't do anything." The new school is more proactive. They say, "fix it now before problems arise and it's too late to fix." Dr. Andrew
Papez is most definitely from the new school. Unfortunately she is still too small. Her accessory pathway (extra path the electrical pulses go through that make her heart beat too fast) are much too close to the AV node (normal pathway) which makes surgery very dangerous as they could accidentally close off the AV node
and he thinks there may be more than one extra pathway. Her
Ebstein's Anomaly (malformation of the
tricuspid valve) will get worse as she grows. If the blood volume that flows backward into her other ventricle continues to increase, she will not get the oxygen she needs. The procedures to correct this valve surgically are not very good and often patients come out of the surgery worse off than when they went in, if they come out at all. With all this he was cautiously optimistic. He is thrilled that she is stable, and amazed at her size, color and the sparkle in her eyes. Most
Ebstein's babies are small, frail, and somewhat lethargic. He is taking her off of her current medicine because the side effects can sometimes cause cardiac arrest and it makes her skin blister in the sun. The new medicine is not as effective but safer. We'll try it and pray she remains stable.
THE RESULTS:
There's nothing like a day in the doctors office to give you a reality check. Those little daily problems like quarreling kids, homework struggles and financial obligations that seem insurmountable one day, don't seem quite so bad. Pull your little ones onto your lap today, and hold them tight. Life is so very fragile.