Our little Rebekkah had her cardiologist appointment at Phoenix Childrens' Hospital on Friday. We were excited to hear that her Holter Monitor (a device attached to leads on her chest to record her heart beat for 24 hours) came back negative. Her Doc is planning on taking her off her medication in the spring if everything continues to go well with her WPW (Wolf Parkinson White Syndrome). That's great news because the medication she is on makes her very sensitive to the sun, and she gets blisters when she's out in it for very long. I don't think she could take another summer inside!
We also got the results of her echo cardiogram (ultrasound of her heart). This was not quite as good of news. Her Ebstein's Anomaly has been upgraded from a mild to a moderate abnormality, which basically means the malformation of her tricuspid valve is getting worse as she grows. The good news is that the leaking of the blood from one chamber to another is still not substantial enough for the surgery. He said as long as the leak is minimal, we just "watch it". This means that if she turns blue we need to call him. No pressure huh! But the surgery is very tricky, he called it an 8 1/2 or 9 on the scale of difficulty, 10 being the hardest. So I guess we just watch and wait and do it all over again in March. And in the meantime, enjoy having our sweet little princess!
3 comments:
Wow Katie... how do you keep it together? I am so glad one of the problems is improving and keep your little sweetie in my prayers.
I'm so glad Bekkah is here with us! She is a little miracle--and so stinkin' adorable! We love you guys and keep you in our prayers!
I love Bekkah and the sweet spirit that she is. Always quick to smile and give out hugs and love. I am happy to hear at least some good news. I understand the "watch and wait" diagnosis. She is in our prayers.
Post a Comment